tag:blogger.com,1999:blog-7400857.post113814649638251746..comments2023-09-16T05:17:59.903-07:00Comments on Developmental Disability System Reform: Choice and Choices, Part IIDoug The Unahttp://www.blogger.com/profile/04753071669562594194noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7400857.post-1140322766209753172006-02-18T20:19:00.000-08:002006-02-18T20:19:00.000-08:00Parca, when you made your reference to an RC direc...Parca, when you made your reference to an RC director giving a relative an unnecessary job I thought you might be referring to one whose daughter became a deputy director at the Family Resource Center attached to that RC.<BR/><BR/>And I agree with you, that DDS seems to be much harder on RCs that have trouble budgeting than those that just don't serve clients well, although I'll give them the benefit of the doubt that this is because of difficulty quantifying anything that doesn't have columns.<BR/><BR/>For that reason, I really believe that more accountability and more measuring of outcomes is a big part of the cure. Let the RCs that are uncommitted to the entitlement they exist to implement and unpleasant to their partners answer for results.Doug The Unahttps://www.blogger.com/profile/04753071669562594194noreply@blogger.comtag:blogger.com,1999:blog-7400857.post-1139442642007215572006-02-08T15:50:00.000-08:002006-02-08T15:50:00.000-08:00Mobius Man, I appreciate the Samuel Johnson quote,...Mobius Man, I appreciate the Samuel Johnson quote, I hadn't heard it before. And the poem, although I regret what you're going through. I know XXXX appreciates your care and I hope that working together we can make things better for him. <BR/><BR/>Daredevil, Spam is always appreciated. Salaam.<BR/><BR/>PARCA, welcome. What makes you say that a deputy family resource center person in unnecessary. I understand what you're saying. My preferred approach would be to address the errors in the design of our system that allow foolishness to prosper at the expense of helping clients.Doug The Unahttps://www.blogger.com/profile/04753071669562594194noreply@blogger.comtag:blogger.com,1999:blog-7400857.post-1138570413967478272006-01-29T13:33:00.000-08:002006-01-29T13:33:00.000-08:00nice postnice postDareDevilhttps://www.blogger.com/profile/12260267052517190817noreply@blogger.comtag:blogger.com,1999:blog-7400857.post-1138335808136855902006-01-26T20:23:00.000-08:002006-01-26T20:23:00.000-08:00Knowledge is of two kinds.We know a subject oursel...Knowledge is of two kinds.<BR/>We know a subject ourselves,<BR/>or we know where we can find information upon it.<BR/>(Samuel Johnson)<BR/>This dad<BR/>this son<BR/>must be doing something right as the last few weeks have had the System Lords and the Gatekeepers applying an inordinate amount of pressure upon us as we "just" try to live in our community, our town with an expectation that an 11 year old boy with low incidence disabilities belongs with his family........not THE group/congregate facilities offered and proferred.<BR/>There's something happening here<BR/>What it is ain't exactly clear<BR/>Government waste, of dollars appear<BR/>To try to make us NOT care<BR/><BR/>United we stand<BR/>To always care<BR/>And expect<BR/>Compassion<BR/>Humanity and<BR/>Assistance<BR/>Any standards less than that are no standards at all<BR/><BR/>The Cartographers of old were correct in drawing California as an Island for they must have known that special needs families would inhabit a place/location not connected to the mainland....difficult to locate, hard to navigate to/from, and seen by very few if any general/mainlanders.... easy to imagine not existing at all.<BR/>But we do exist.<BR/>We Are.<BR/><BR/>DP and SQ....MM and his son find this system soooo screwed up that we pass the baton tonight for it has tired us out for the moment, but after a good night's sleep(or not in case of a sometimes sleep disordered son and sleep deprived dad).....we will expect you to pass the baton back in a day or week or two.......We refuse to opt out or be co-opted in this system...this is the hardest thing a dad or mom will endure and it can/will/does get even harder....BUT...as a home bound professional....I continue to help other parent and professionals navigate the systems and ofttimes come back with success stories<BR/>Let's inspire one another in the challenge of this all for substantive and real ways to design and build better supports.........<BR/><BR/>My son's needs call out<BR/>into the darkness of the night and slowly into the early morning hours<BR/>LaterAnonymousnoreply@blogger.com